Our Family

Our Family
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The Marincik's daily adventures....

Welcome to our page, we are happy that you have chosen to follow us and our daily adventures in life. Both our boy's have Danon Disease as well as myself, Kim. If you or anyone you know of has Danon's please have them contact us, we would love to hear from other families with this disease. Enjoy our daily blog and leave comments if you please....
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Thursday, March 11, 2010

Going to a basketball game with my husband...yay!

We are headed to a Warriors Basketball game in Oakland tonight. I am so excited and ready to cheer them on. We have been looking forward to this for awhile. Chris's dad and step mom will watch the boys so we can go.

BA update: I still have no feeling in my breasts it's the strangest thing ever. I can poke them with the tweezers or something poky like that and i can't feel it. I slept pretty well last night except for the strap around 4am, i had to get up and take everything off I couldn't go back to sleep with the stupid thing on. It was driving me nuts. My appointment hopefully Monday will be a good one and I can ask the Dr. some more questions about this one implant that seems to be higher than the other one. It drives me nuts. It's not like it's a huge difference but still it's annoying that I know it's different and I want it fixed.

I can't believe it's Thursday already where did this week go. Monday Chris starts his new job and things will start to get back on track with my schedule in the Morings with the boys etc. I still can't do too much due to my surgery this is at least for another two weeks, but I will be so happy when I can get back on track. =)

I'm off to try and nap we will be out late tonight and I am tired already!

Will update after the game with some pictures! =) Yippie!

Wednesday, March 10, 2010

Wednesday and day day 9 post op....

I feel really good, went for a VERY short walk with the dog and realized just how out of it I truly am already. This stinks but hopefully sooner than later I can get back on track.

Today was a good day, busy again but pretty good. I got to visit with a good friend today and catch up. Chris had lunch with his boss and some new coworkers and it was a very good lunch. Liam had baseball practice and now we are off to eat dinner out, then Chris is going to a coaches meeting tonight. ughhhh way too much to do.

I am so sore from this strap that I hope i can take it off in a weeks time when i go back on Monday well i guess it's less than a week now. I am not so sure i will be able to take it off though, one breast is riding significantly higher than the other. Ughhhh this is so not what I need right now. I do not want to go through another surgery to try and get it fixed. I will pray that the lord will make the implant move down on it's own and I don't have to go back in for another surgery. This is all here say till i speak to the doctor on what the "next" step is if this wrap/strap thing doesn't work. I guess you could say im a little scared. I hope this appt. next week goes well. If not I am on my own, Chris starts his new job Monday so i will not have him there with me like he has been the last 4 appointments.

Quote for the day- "love not for what they have but for who they are inside"

Tuesday, March 9, 2010

Great day ........busy week........lots coming up........

Well today was a great day! I keep wishing I could go to the gym and at least do the bike but I was told no gym for 4weeks that means April 1st. Really? I have to wait that long. It stinks because i had a schedule and was on a roll. I know I have gained some of my weight back that I lost but will get back on track soon. So with that said, I guess I shouldn't eat anymore peanut butter eggs huh? lol. Chris and his bunny sweethearts lord between those two I could be on a sugar high all day. I put them away in a cabinet thinking ok out of sight out of mind. haha yeah right.

Today was good we took the boy's to school this morning and headed to take something back to Target only to turn around and buy Liam some new shirts. He is growing and needed some new shirts since he doesn't get hand me downs. We went to lunch with my in-laws which was so nice without the kids for a change. We were able to have adult conversation without a little turkey whining or wanting to go. Then good ole Costco for a few things and back home. I am pooped out. I stayed home while Chris went to get the boys and finish running a few more errands. I just couldn't keep up. The strap I have on my chest is not the most comfy so i decided to stay home and try to stay still for a bit with my feet up. Tomorrow I will be home all day with no car. Chris has to take his car to get his new stereo in it (his treat since he has needed one for awhile now) and then he is off to lunch with his new boss, then home to pick up Liam and Mason then off to little league practice while mom and Mase stay behind to play and maybe read a few books together. What a busy week this is turning out to be. Thursday is a big day for Chris and I we love the Warriors basketball team and are going to a game on Thursday night. My father in law and his wife are watching the boy's so we can go and enjoy an evening out together. YAY! I can't wait, i still have to figure out what to wear....hmmmmmm do i really have to wear the strap for the 2 1/2 hrs of the game...nahhhhhhhhhhhhhh I can take it off right when we get there and put it on when we get back in the car! =)

Gosh it's Tuesday and I feel like it's Friday already. So much to do. We have alot of stuff coming up. Chris and I were going to finally have our wedding ceremony that we have always wanted and dreamed of but when it came down to it, we honestly thought do we want a ceremony with the white dress/tux and all those people or do we want to celebrate this marriage with ourselves and another couple on a cruise and also buying me a new wedding ring set. Which made more sense, which was less stressful, well duh the answer to that was the cruise and wedding ring set. So we are looking forward to a nice honeymoon cruise you could call it and our new found love with a new wedding ring for me. Life is so amazing right now with family, friends and most of all God up above. He has given us opportunities of a life time and has guided us in the right direction to get where we are today. I am so thankful for everything in my life and will continue to be blessed with everything around me.

This is a long journal entry for today wow haven't written one this long at all but I guess I had a lot to say. Thanks to those of you who are keeping up with this blog and hearing about our daily life in the Marincik household. We are thankful for all of you in our lives and wish you all the best....=")
this is something new im going to try and do
quote for the day:
"Love, Peace, Joy and Happiness are key to living a healthy life"

Monday, March 8, 2010

Monday and went to my 7day post op appt....

All is well, Dr. Aycock says that the twins look great and are stretching nicely. The left one is trying to creep up so he has put a strap on me to keep them down in place where they are supposed to be. I have to go back in one week to be seen again. Hopefully after that I will see him in a month's time. I am just glad he is ontop of things and so helpful. I had a great day today with my husband out shopping, lunch together, and then the doctors office. We came home to a clean house our housekeeper was here today so it is always nice to come home to a clean home. =) I am off of this thing now...just wanted to update on the twins! haha! Have a great evening and start to the week!
quote for the day : "We are only given what we can handle, so take what you have and enjoy it, know you are blessed and God is with you each and every day carrying you along the way"
update Monday night 6:45pm
I have to add something, I hate this strap to hold the twins down, it is so uncomfortable for me, gosh a week of this...hope it helps and I can take it off soon. Im in pain! =)

Sunday, March 7, 2010

Sunday and I am finally off all pain meds

Well I slept in the recliner last night because I still can't sleep in my bed. It is just too hard to lay flat on my back, i find it hard to breathe. Anyhow, i slept till about 2:30am then woke up and watched a bit of tv, then went back to sleep till about 6:30am when the boy's woke up and of course woke me up.

I do not have a headache this morning and hope it stays that way. Those meds really threw my body for a loop. I am still sore but its getting better with each day. The bruising is still there and healing slowly. I just wish my right breasts would not be so painful and the swelling would settle down on that side. eventually it will be fine but from what I see and feel it feels like it is going to take forever.

Tomorrow is my 2nd post op appt with Dr. Aycock and he will take the stitches out and make sure everything is going the way it should. I am a little nervous to be honest. I hate the fact that he has to even touch my breasts at all. They still hurt ya know. Oh one more thing they are still numb, i really wish the feeling would come back it sucks. Sometimes i feel like i have gas or something inside my chest but it's hard to explain the exact feeling...gas, air, something and it hurts, making it hard to breathe at times. I will mention this to the doctors.

alright im off of here, gotta get some stuff done around the house

Saturday, March 6, 2010

Wow it's Saturday and I am 5days post op

What a day, I am still not sleeping well and have been in my recliner downstairs. I did go back upstairs to my bed around 8am this morning to fall asleep on my back for 2hrs. I woke up and took a shower and got dressed. I have had a headache since waking up this morning I tried to take Tylenol and it only masked it for a little bit then it would come back. I am still very sore. I am no longer taking any pain medications since they seem to be the cause of my headaches. It's amazing how narcatics can become addicting to the body and if the body doesn't get them, it gets mad and throws headaches, body aches etc your way.

I was talking to a friend who mentioned using some sort of bengay on my forehead that it seemed to work for her so I went and looked in our medicine cabinet and found absorbing jr. the only thing we had for muscle aches and i shit you not it worked. My headache is gone. Thank goodness for my friend who told me that.

as for my breasts well the left one is doing awesome, hardly no pain anymore but the right one, it is still swollen and it burns on the side which is weird. I do not hear the gurgling sound anymore so im guessing the implants settled into place but the right breast is still giving me problems. The bruising on both boobs was not too bad but again the right breast had more bruising and swelling than the left one. I am thinking it is because i was smaller on the right side. Not sure though. I am supposed to go to my 2nd pre op appt on Monday afternoon and I will ask him if the burning is normal. I definitely can tell when I lift something that is just too heavy for me, I feel popping, i drop whatever it is I lift and rest for awhile. I hope I didn't do anything i wasn't supposed to to my right breasts and this is why it hurts so bad still...i have been resting and not lifting hardly anything but my purse and maybe a bag or two from target that weighed maybe 5lbs.

Well thank the lord for my friend I would be crying by now if my headache was still going on. I just hope that I can sleep in my own bed tonight and get a full nights rest thats all I want. Till tomorrow, I will park it on the couch the rest of the night.

Friday, March 5, 2010

Day 4 post op and doing ok....


I got out today and went to return a few things with my hubby. I took oxycodene this morning and again this afternoon. I also took two naps today about an hour each. I woke up at 2:50am this morning and wasn't comfortable in bed so i headed back down stairs to our couch where I fell asleep till about 4:30am then woke up again at 6:15am to my boys getting rowdy and ready for school.

My breasts are still tight and very very full. They are heavy and feel like an elephant is sitting on top of them. They are also still very numb and I have no feeling in them. I called the nurse yesterday to see if a heating pad would help she said no way that Dr. Aycock doesn't like for his patients to use heat because it makes the swelling worse. Then the ice pack idea was a no go as well, so I am just dealing with things. It's hard to get used to these things being so HUGE right now. I went and bought three new bras that are all cotton, no wires and very comfy. I had to buy two sizes bigger around my chest since I am so swollen. I can't wait to wear my cute shirts and outfits.

I am waiting on Chris to get home from the gym then we are headed out to get the boys and possibly to the mall up in Santa Rosa another town close to ours. Hope it isn't too much of a late night for us.

Can't wait till Monday it will be 7 days post op and the stitches are supposed to come out, my fear is me fainting! haha! We will see what happens.